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Statement Sets the Record Straight on AHCA and HR 1313
May 2017 - Recent events related to proposed changes in health care and genetic privacy laws have spurred concern and uncertainty in the hereditary cancer community. Some media stories have disseminated inaccurate information, which has intensified people's unease. We prepared this briefing to dispel some of the misinformation and allay some of the fears that have been expressed by members of our community.
This statement aims to answer questions and clarify information regarding the Preserving Employee Wellness Programs Act (HR 1313), employer-based wellness programs, and the Genetic Information Nondiscrimination Act (GINA). It also explains where things stand with repeal and replacement of the Affordable Care Act (ACA), and clarifies what may be considered a pre-existing condition. We encourage you to share this with friends and family in the hereditary cancer community. Please check back regularly for updates as policies on these and other issues are considered.
News Briefs
10/7/2024 - Urged congressional leadership to swiftly pass the SCREENS for Cancer Act, which would reauthorize the National Breast and Cervical Cancer Early Detection Program (NBCCEDP) for another five years,
10/2/2024 - Joined the Alliance for Connected Care and over 150 orgs in a letter to CMS/HHS encouraging the development of a permanent policy related to telehealth practitioners and the reporting of their location at the time of service.
9/25/2024 - Sent a letter to members of the Senate Judiciary Committee strongly opposing efforts to advance S. 2140, the Patent Eligibility Restoration Act (PERA), which would allow patents on abstract ideas, laws of nature, and natural phenomena.
Related Resources
- Informational GINA flyer
- Genetic Information Nondiscrimination Act website provides an introduction to the GINA law and its health insurance and employment protections. It includes answers to common questions about GINA.