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Statement Sets the Record Straight on AHCA and HR 1313
May 2017 - Recent events related to proposed changes in health care and genetic privacy laws have spurred concern and uncertainty in the hereditary cancer community. Some media stories have disseminated inaccurate information, which has intensified people's unease. We prepared this briefing to dispel some of the misinformation and allay some of the fears that have been expressed by members of our community.
This statement aims to answer questions and clarify information regarding the Preserving Employee Wellness Programs Act (HR 1313), employer-based wellness programs, and the Genetic Information Nondiscrimination Act (GINA). It also explains where things stand with repeal and replacement of the Affordable Care Act (ACA), and clarifies what may be considered a pre-existing condition. We encourage you to share this with friends and family in the hereditary cancer community. Please check back regularly for updates as policies on these and other issues are considered.
News Briefs
9/25/2024 - Sent a letter to members of the Senate Judiciary Committee strongly opposing efforts to advance S. 2140, the Patent Eligibility Restoration Act (PERA), which would allow patents on abstract ideas, laws of nature, and natural phenomena.
9/9/2024 - Signed on to a comment letter encouraging coverage of computed tomography colonography (CTC) procedures and follow-up colonoscopies in the proposed Medicare and Medicaid Program 2025 Physician Fee Schedule (PFS) rule.
8/2/2024 - Responded to an RFI from Representatives DeGette and Bucshon, providing input on the successes, gaps and unmet needs in the 21st Century Cures and CURES 2.0 initiatives, suggesting components for future efforts.
Related Resources
- Informational GINA flyer
- Genetic Information Nondiscrimination Act website provides an introduction to the GINA law and its health insurance and employment protections. It includes answers to common questions about GINA.