Survey about Motivations and Barriers to Talking with Family Members about Inherited Cancer Risk
Surveys, Registries, Interviews
Survey for people with an inherited gene mutation
Study Contact Information:
Study Coordinator: Melissa McCormick by email at [email protected]
Survey about Motivations and Barriers to Talking with Family Members about Inherited Cancer Risk
About the Study
This study aims to understand the different goals and motivations individuals with an inherited gene mutation have when talking about their genetic cancer risk with family members in a conversation. To participate, please email the study coordinator at [email protected] for the link to the online survey.
What the Study Involves
For this study, participants will email the study coordinator for a link to an online survey that will take approximately 25-35 minutes to complete. Participants will be asked questions about talking with their family members about their genetic cancer risk. They will be asked to discuss the goals and motivations they would have in these conversations with their family members. There is no cost to participate. This research is considered minimal risk, meaning that study risks are the same as the risks you face in daily life.
Lead Researchers
- Co-PI: Josephine Boumis, University of South Florida
- Co-PI: Marleah Dean, University of South Florida
- Co-PI: Steven Wilson, University of South Florida
For this study, participants are eligible if they meet each of the following criteria:
- are 18 years or older.
- have tested positive for an inherited gene mutation.
- are able to fluently read and write in English.
- have at least one or more biological family members (such as blood-related parents, children, siblings, aunts, uncles, cousins, grandparents) that are alive and older than 18 years old.
Exclusions include anyone who does not meeting the following criteria:
- is younger than 18 years old.
- is not able to fluently read and write in English.
- has not tested positive for an inherited gene mutation.
- does not have at least one biological family member who is alive and over 18 years old.