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A Study on Options for Managing Cancer Risk Among Women with a BRCA1 or BRCA2 Mutation

Surveys, Registries, Interviews
A survey for women with a BRCA1 or BRCA2 mutation

Study Contact Information:

For more information, contact our study Coordinator:                           

Patricia Nguyen by phone 416-323-6400 Ext. 2761 or by email.

A Study on Options for Managing Cancer Risk Among Women with a BRCA1 or BRCA2 Mutation

About the Study

Women with a or mutation are at higher risk of developing breast and/or ovarian cancer compared to women in the general population. There are various options available to these women to help reduce or manage these risks, including preventive surgery. We are conducting an important new study to examine and understand cancer prevention decisions and outcomes in these women.

This study is designed to investigate why women have chosen the cancer management options that they have, including what factors influence their decisions. This information will help in understanding why there are differences in uptake of cancer preventive or screening options and help improve the clinical care of this high-risk group.

Women interested in participating should contact our study coordinator Patricia Nguyen by phone 416-323-6400 Ext. 2761 or by email.

What the Study Entails

Participation is easy and requires the completion of a short, online, easy-to-use survey. The study survey collects demographic and medical information, and may require completion annually. This survey will require 15-20 minutes of your time. Upon completion of the survey, you will receive a gift card to thank you for your participation.

Lead Researchers

Dr. Joanne Kotsopoulos, PhD
Dr. Steven Narod, MD

This Study is Open To:

If you are interested in participating, you must meet the following eligibility criteria:

  • You have received genetic testing results indicating an in either the or gene.
  • You have not had risk-reducing surgery to remove fallopian tubes/ovaries, OR you only had a ( removed).
  • You must be at least 18 years of age.
  • You do not have a prior diagnosis of ovarian cancer.
This Study is Not Open To:
  • Women without an in or .
  • Women who have been previously diagnosed with ovarian cancer.