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Volunteer Spotlight – Sara Kavanaugh

October 01, 2024

Volunteer Spotlight – Sara Kavanaugh

My journey with FORCE began after learning that I carry Lynch syndrome (MSH6) and CHEK2 mutations in 2022. Since then, I’ve taken robust screening and preventative steps to manage my cancer risk, and I quickly realized how important it was to connect with others facing similar challenges. Navigating hereditary cancer risk is always evolving, and we’re constantly learning and adapting. That’s why FORCE is so important—it provides the support, resources, and education our community needs to stay informed and empowered. Attending FORCE’s 14th Annual Conference in June was a truly eye-opening experience. I participated in sessions that covered cancer risks related to my own mutations and a powerful final session about mastectomies. I felt so blessed to spend time with amazing and inspiring individuals who, like me, are navigating their own paths with hereditary cancer. It was an incredible opportunity to connect, learn, and empower myself in this community.

One of my proudest moments was advocating as a Patient Advocate Leader volunteer before the Tennessee General Assembly for legislation that emphasized the importance of accessible PSA testing for high-risk individuals. It was an honor to represent our community and support proactive health measures that can save lives. I’ve also had the privilege of participating in Advocacy Days in 2023 and 2024 with two other incredible volunteers. Together, we met with legislative representatives to discuss the need for access to genetic counseling, testing, and preventive care. We advocated for bills that aim to reduce health disparities and provide essential services to individuals at high risk of cancer.

Through my podcast, The Positive Gene Podcast, and speaking engagements, I’ve been able to elevate these conversations even further. It’s been incredibly rewarding to interview experts and community leaders like FORCE Board President Wenora Johnson, and share stories that help others navigate their own journeys with hereditary cancer risk. Whether I’m sharing information on The Positive Gene Podcast and my blog, raising awareness through videos on social media, supporting someone through the Peer Navigation Program, or advocating for change, I love knowing that my efforts are helping to build a stronger, more supportive community. I am so grateful to be a part of it.

Posted in: Volunteer Spotlight
Tags: Patient Advocacy

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