by Johanna Zollmann
Growing up, I never knew my maternal grandmother, who passed away at 62 from late-stage ovarian cancer. Her loss was sudden and devastating. Despite her absence, her artistry fills my home, a reminder of her life and the genetic legacy she left behind.
Years later, while stationed in Grafenwoehr, Germany, as an active-duty Army officer, I lived near my mother in Stuttgart. Those years were precious, filled with weekends together. But in October 2016, at 60 years old, my mother was diagnosed with late-stage ovarian cancer, the same disease that had taken her mother.
A Family Legacy
As part of her treatment, my mother underwent genetic testing, which revealed that she carried a BRCA1 mutation. Sitting beside her in the doctor’s office, I watched her face this devastating news with grace, knowing it was too late to save her own life but determined to protect her family. Inspired by her courage, I was tested and discovered I carried the same mutation.
Despite all the medical interventions, we lost my mother six months later, in April 2017. Her loss changed my life, but her resilience taught me to take proactive steps to protect my future.
For years, the prospect of major surgeries—hysterectomy and mastectomy—felt overwhelming. Grief, motherhood, and a challenging relationship kept me from acting. Initially, I chose to do nothing, afraid of what these changes would mean for my life.
Eventually, I realized my "why." I wanted to honor my mother’s legacy and ensure I could be present for my children as they grew into adulthood.
Choosing Preventive Action
In 2022, I had the opportunity to give back in a meaningful way. I donated 1,209 ounces of breastmilk, which provided 3,627 meals for premature infants. Knowing I contributed to their survival fills me with pride and represents a legacy of nurturing that I will always carry with me.
This year, I took proactive steps to safeguard my health. On October 8th, I underwent a full hysterectomy at my local Veteran Affairs Medical Center (VAMC). Adjusting to menopause has been an adventure—strategically placed fans throughout my house are now my best friends.
Just weeks later, on November 25th, I had a prophylactic bilateral mastectomy and am now awaiting breast reconstruction. These surgeries have been physically and emotionally challenging, but I’m profoundly grateful for the care and support I’ve received. The VA has been exceptional, providing comprehensive, compassionate care all under one roof.
Gratitude and Advocacy
This journey has taught me so much about resilience, community, and the importance of proactive care. I’ve been amazed by the unwavering support from my family, friends, and the Veteran community.
As I recover, I carry the strength of my mother and grandmother with me. I am hopeful for a future where fewer women must face such difficult decisions. For now, I focus on healing, advocating for awareness, and embracing every moment with my children.
While I’m thankful for the focus October brings to breast cancer awareness, I hope September’s Ovarian Cancer Awareness Month will one day receive the same level of attention. Greater awareness could drive advancements in preventive care and early detection, providing women with better options than what currently exists. Every woman deserves access to the tools needed to detect and prevent these devastating diseases before it’s too late.
Years ago, I discovered the wonderful community of FORCE (Facing Our Risk of Cancer Empowered). Reading the stories of others facing similar challenges was incredibly comforting and inspiring. Knowing that there is a strong, supportive network out there has been invaluable in my own journey.