Cancer Risk Perception and Management of Individuals With a BRCA1 or BRCA2 Mutation Who Were Assigned Male at Birth (AMAB)
https://www.facingourrisk.org/research-clinical-trials/study/324/cancer-risk-perception-and-management-in-brca12-carriers-assigned-male-at-birth-amab
Surveys, Registries, Interviews
Research study enrolling individuals assigned male at birth (AMAB) who are a confirmed carrier of a BRCA1 and/or BRCA2 mutation
Study Contact Information:
Student Investigator: Rachel Cohn-Lynch, [email protected]
PI: Theresa Sciaraffa-Aparicio, [email protected]
About the Study
Our study seeks to explore the experiences of individuals with BRCA1 or BRCA2 mutations who were assigned male at birth. We aim to understand your journey to genetic testing and how you perceive and manage your cancer risks.
What the Study Involves
If you are interested in participating, please scan the QR code or click the link below to complete a brief survey that will determine your eligibility. If eligible, you will receive an email invitation to take part in a private, one-hour Zoom interview, where we will discuss your experiences with genetic testing and how you perceive and manage your cancer risks. As a token of our appreciation, you will receive a $50 VISA gift card upon completing the interview. There will be no further follow-up, and your participation will conclude at the end of the interview.
https://northwestern.az1.qualtrics.com/jfe/form/SV_eez5EyiUoddNQou
Lead Researchers
Lead Researcher: Rachel Cohn-Lynch
PI: Theresa Sciaraffa-Aparicio
This Study is Open To:
- Male (Assigned Male at Birth)
- 18 years or older
- A confirmed carrier of a BRCA1 and/or BRCA2 mutation
- Located in the United States
- English Speaking
This Study is Not Open To:
- Female (Assigned Female at Birth)
- Under 18 years of age
- Does not have a confirmed BRCA1 and/or BRCA2 mutation
- Located outside the United States
- Non-English Speaking
About FORCE
FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.