What Factors Influence Survivors’ Guilt in Individuals Who Tested Negative for a Known Hereditary Cancer Syndrome?
https://www.facingourrisk.org/research-clinical-trials/study/264/survey-for-people-who-received-a-negative-genetic-test-result-for-a-known-mutation-in-the-family
People who received a negative genetic test result
Study Contact Information:
Study Coordinator: Brianna D’Ambrosio, Master’s in Genetic Counseling Student, University of Maryland School of Medicine, [email protected]
Principle Investigator: Kristin Maloney, MS, CGC, Master’s in Genetic Counseling Training Program, University of Maryland School of Medicine, [email protected]
About the Study:
The goal of this study is to understand the experiences of people who have received a negative genetic test result for a known familial hereditary cancer mutation (i.e., a “true negative” result) and determine what factors influence the presence of survivors’ guilt in these individuals. Survivors’ guilt is an emotional response in which a person has feelings of guilt after surviving a life-threatening situation when others did not. Data from this study may help providers better understand the impact a negative test result can have on a patient and enable more effective pre- and post-test counseling.
This study is no longer recruiting patients.
This Study is Open To:
This study is no longer recruiting patients.
This Study is Not Open To:
This study is no longer recruiting patients.
About FORCE
FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.