Zoom Interviews to Explore Ideas about Long-Term Follow-Up Cancer Genetic Counseling

https://www.facingourrisk.org/research-clinical-trials/study/213/zoom-interviews-to-explore-ideas-about-long-term-follow-up-cancer-genetic-counseling

Interviews with adults that have recently met with a cancer genetic counselor in the U.S., regardless of genetic testing outcome

Study Contact Information:

Angelea Kuipers
[email protected]
760-828-5487

About the Study

This study aims to explore perceptions of patients and genetic counselors about long-term follow-up in cancer genetic counseling, including if and how patients would like additional follow-up with a genetic counselor beyond the pre- and post-test counseling session. If you wish to participate, email the student investigator to schedule a voluntary 30–60-minute Zoom interview. All information will be de-identified. There are no costs associated with participation. NOTE: This study is no longer enrolling.

This Study is Open To:

You are eligible for this study if you:

Are 18 years or older
Have received cancer genetic counselling with in the last 2 years in the United States

This Study is Not Open To:

The following people are not eligible:

Have never had an appointment or spoken with a cancer genetic counselor
Are under 18 years old
Have seen a cancer genetic counselor outside of the United States

About FORCE

FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.