Investigating BRCA Previvors’ Utilization of Social Media for Health Decision Making and Social Support

About the Study

This study investigates why women share aspects of their previvorship identity on social media platforms. We are interviewing women above 18 years old, who carry known pathogenic variants in BRCA1 or BRCA2, and share their previvor journey on social media platforms like Instagram, Facebook, Twitter, and TikTok at least once every other week. We are conducting anonymous interviews over Zoom with women who qualify. If you are interested, contact Mariah Wellman at [email protected]. NOTE: This study is no longer enrolling people. 

Participants must identify as a woman over the age of 18 who has diagnosed pathogenic variants in BRCA1 or BRCA2 and shares their previvor journey on social media platforms like Instagram, Facebook, Twitter, and TikTok at least once every other week. They must also consume social media content on a weekly basis. Eligible participants must have not been diagnosed with hereditary breast or ovarian cancer.

Individuals cannot participate if they have been diagnosed with hereditary breast or ovarian cancer. They also cannot participate if they do not share about previvorship on their personal social media accounts.